Genetic Navigator Program

The MSRGN Genetic Navigator program is an initiative to help families navigate the genetic services system in their state of residence.

In March 2021, 8 Genetic Navigators were selected, 1 per each of the 8 states in the MSRGN region, and completed 8 training modules on various aspects of genetic navigation. Upon completion of this training, these 8 Genetic Navigators are now available by email or zoom to connect with families and assist them on their genetics journey. When a family is exploring and accessing genetic services, they may have many questions along the way. View the video above to hear some of the questions our MSRGN Genetic Navigators experienced on their own journeys as well as some of the questions they can help families navigate. From 2022-2024, navigators were trained in 3 other regional genetics networks with variations of the curriculum that originated in MSRGN. In 2024, a Genetic Navigator 2.0 curriculum was developed for genetic navigation inside the genetics clinic and 9 navigators across the country were trained in April 2024, just before the grant sunsetted.